A play-by-play.

This blog is first & foremost about our family. With that being said, this is going to be a pretty lengthy post (to go into detail about this post), more for myself than anyone else really, so be warned.

This week was a full moon & the events that took place Tuesday certainly solidify my belief in the idea that crazy things happen when a full moon is out. Here’s the play-by-play

8:15 – I’m dropping Tucker off at school when one of the other mom’s tells me a man is on top of the cell tower at the police station just two blocks from Tucker’s school. He’s threatening to jump, they have the entire area  blocked off, and you can even see him out Tucker’s classroom window (side note-the kids couldn’t see him, I promise.) I ask Tucker’s teacher if I can leave him even though 8:20 is drop-off time because I don’t know how long it will take me to get to work with the roads being blocked off. She says yes & I take off for school.

8:32 – I arrive at school just a few minutes late. Things return to normal as I begin teaching.

12:30 – Mom sends me this text:

Lilah doesn’t feel good at all. Tried to take her armpit temp…it got to 101.4 and she wouldn’t let me finish. I will try again after she settles down. Coughing bad.

I respond by asking if she has Tylenol to give her, she does, and she gives it to her, although it wasn’t enough for a full dose. She sends me a picture of her falling asleep sitting up, she’s tired but fusses every time mom tries to lay her down.

1:18 – I send mom this text:

We just went on lockdown. Don’t know why.

Yes. You read that right. & I promise, my school is not as bad as the post from last week & now this, paint it out to be. We went on lockdown just as I was about to have my kids come in from recess. We raced to our room and waited for instructions. I texted a sheriff friend of ours & he tells me a man had shot his wife early that morning and their child is at one of our schools in the area so they were locking all of them down in order to make sure the child was safe.

1:30ish – Mom sends me this text:

Lilah is throwing up.

I ask her if she wants me to try to leave (even though we are on lockdown) and she tells me that she got her cleaned up, is holding her, and that I should stop to get Tylenol on my way there after school. She says she’s dozing in & out of sleep. I decide to call and make a doctor’s appointment for her after school, I got it for 5:10 pm.

3:45 – I leave work early to get Lilah. I’m driving out of the parking lot when my Mike calls my phone. He tells me that she’s okay, but that Lilah is on her way to the emergency room in an ambulance because she had a seizure. I start to freak out, of course. He tries to calm me down. Tells me that the paramedics say they are 100% certain it was a febrile seizure related to her fever and that she is going to be ok. He had already turned around from heading home at this point and was almost to the hospital. I head there of course instead of mom & dads. I call mom and she is crying and trying to explain what had happened. She is also trying to get the kids ready so she can meet us at the hospital too.

I’ll stop the timeline here. Can you believe all of this? I certainly can’t and it’s giving me an upset stomach just thinking about it again. I get to the hospital a few minutes after Mike. We keep telling the security guards at the ER Lilah’s name and that she’s only 2 and came in by herself. A nurse sees how panicked I am and starts to help. They find out where she is and take us to her. She was so lethargic (which the doctors all kept saying was normal). I was so scared though. She would open her eyes and look around but they were glassed over and it was like she couldn’t focus on anything. We’d talk to her and she’d just stare. Again, they kept saying it was all normal. That she was exhausted from the seizure. Her temp at this point is 104.6. They were wiping her down with wet rags and getting IV’s hooked up to her.

Once they got her situated they started to draw blood and take urine samples to run flu, RSV, strep, and other tests. By this point she would cry in response to them messing with her and they said that was a good sign that she was responding to stimulation. They eventually did Xrays on her lungs as well to check for pneumonia. They told us they were going to ship her to the local children’s hospital in Orlando (Arnold Palmer, the adjoining hospital to Winnie Palmer, where they were born, and the same hospital she had to go to a few days after coming home from the NICU when she stopped breathing). I tell Mike to go home & shower (he was still in his work clothes) and my dad went to pick him up so we’d have only one car. By the time he gets back to the hospital Lilah is almost herself again. She was still going in & out of sleep but when she was awake, she was cranky and would tell us ‘yes’ & ‘no’ to questions. Just before we leave for Arnold Palmer the nurse tells us the reason they are sending her is because it’s pneumonia and they want her to be monitored.

Mike ended up riding with her up to Arnold Palmer. He had to lay on the gurney and hold her. I drove my car, I was too nervous to ride with her, just in case she really got scared and I’d have a hard time holding her. Lilah was completely herself by the time we got to AP. She wouldn’t let anyone near her, and it took three doctors to hold her down to check her out (they confirmed ear infection and a virus but eventually said that it was not pneumonia, the Xrays were clear.) and it also took three nurses to re-do her IV line. One nurse said, “I like her spunk!” and they all kept commenting on what a fighter she was (we had told them about her being a 29 weeker and they all agreed the fighting in her is what has gotten her where she is today).  She finally got to sleep around midnight, as did we, but woke up around 3:45 am. I sat up with her watching cartoons and eating cereal. She fell back asleep around 5 am but was woken up by doctors making their rounds at 7 am.

We spent the morning dozing on & off between nurses & doctors checking on her and were discharged around 1:30 that afternoon. Once we got her home, we bathed her, and Mike and her lounged while I headed to school to leave sub plans for today (the downfall of being a teacher is that you have to PLAN a day off, ugh). She slept in our  bed with Mike last night, and me on the couch not sleeping very much. I kept going in to check on her, make sure her fever had not returned.

I’m not going to go into detail about her seizure, especially since I wasn’t even the one there when it happened, but mom said it was terrifying. She said she felt helpless. Thank God she called 9-1-1 right away though. The doctors all said that this type of seizure is normal in young children (under the age of 4) and happens when a temperature rapidly rises or falls. We will have a follow up appointment with our doctor next week and I plan to talk in length with him about this and what our plan should be if it ever happens again (yes, it’s more likely to happen again now that it’s happened once. Joy!)

If you made it to this point, you deserve a medal. My mom deserves a medal, too! Really, she’s been a mess since this happened. & still has kept Lexie & Tucker through it all. I miss them like crazy and am looking forward to spending a weekend of resting & relaxing at home with all three kids.


Lilah Hospital

{From top left to bottom right: 1) in the ER, out of it. 2) Fruit loops at AP, feeling better. 3) Juice & a baby hospital gown. 4) Up watching cartoons at 4 am. 5) Feeling much better now. Watching toons with daddy. 6) On our way home!}

Lilah Hospital1

{Showing the bear she got from the hospital, she loves it. This was after we got home & gave her a bath. Sleeping in momma & daddy’s bed last night, with her bear, bunny blanket, and one of Tucker’s cars. Sending daddy a picture message this morning.}

A big thank you to everyone who sent kind thoughts & prayers our way via facebook, twitter, my blog post, and instagram. We appreciate all the love you have for our little Lilah!

P.S. Mike told Lilah, “Next time you want a Lilah Day just let us know & momma & Daddy would be more than happy to spend the day with just you. We don’t need a trip to the ER to do it!” I thought that was hysterical but anyone who knows our Lilah, knows she loves to be our little queen!

About TwinkieTotMom

Heather has written 1535 post in this blog.

Heather is the founder of Life as we know it with Two Twinkies & a Tator Tot: the blog. From home DIY to weekly fashion of an everyday mom, wife, and former teacher turned marketer to stories about surviving life with three kids, you can find it here. Heather is keeping it real and telling it like it is. You can also find her on Google+, Twitter, Facebook, Bloglovin, Instagram, and Pinterest.

21 Responses to A play-by-play.

  1. Meagan says:

    Phew, Heather. I am sob crying over here. Crying so much in fact that I’m quite certain it’s got to be that time of the month soon, lol! I am so glad that she’s doing better. I cannot even imagine how scared you, Mike, and especially your Mom must have been. Good thing she’s done this Mom thing a time or two! I hope that you guys rest up and enjoy your weekend with the kids. Let me know if you’d like dinner brought to you or anything. I’m off to go give Cooper a squeeze.
    Meagan recently posted..A little update on our friend…My Profile

  2. Jenny says:

    oh my gosh, i am so glad everything seems okay now. Can’t even imagine what you were going through. My thoughts and prayers are with you…
    Jenny recently posted..Inspiration Workshop – Favorite ShopMy Profile

  3. Christina says:

    UGH! I feel your pain! The first time my son had a febrile seizure he was 11 months old and it happened while he was taking a nap. Quite easily one of the scariest things I have EVER seen (be glad you weren’t there!!!!) and each time he had one I would cry and cry. He had to see a neurologist because he was having them frequently, but thankfully never without a fever so we knew it was “just” febrile seizures. We were given anti-seizure medicine to give to him, along with alternating Tylenol and Motrin every time he would get a fever (we did it even with the slighest fever, just to be safe (not giving the seizure medicine portion, but the Tylenol/Motrin portion). It took some time but we got so good at figuring out when they’d be coming that we were able to nip them in the bud before a seizure happened. I’m very happy to report that he’s 5 1/2 and has been seizure free for well over 2 years (KNOCK ON WOOD!!!! :)) Best of luck and I”ll be praying! 🙂
    Christina recently posted..Don’t be jealous…My Profile

  4. Jessica says:

    Oh my goodness. How scary. I’m glad to hear everything is okay.
    Jessica recently posted..The Annoyed Cool KidMy Profile

  5. Kimberly says:

    I have been thinking of you since I first heard about Lilah. I’m glad everything was okay and I’m sure you can all use a weekend together!
    Kimberly recently posted..Made To Be A Boy MomMy Profile

  6. Krystle says:

    Such a rough day :(. I love the Tampa Bay Bucs Bear and I am sooo glad she’s doing better. We went into Lockdown at OHS as well, and it was crazy terrifying….most of the kids were at lunch and were sent to their 4th periods in a hurry!

    I’m so glad Liliah is feeling better, she’s such a cutie….and a fighter! I’m partial to thinking it’s because she’s got that red head spunk ;).

  7. Meagan says:

    WOW! Thank you for taking the time to write up a timeline. I can’t even imagine how crazy and scary this was for you. I’m in shock just reading it! My husband would say she is going to be a heck of a teenager! ha! What a fighter. Must be that firey red hair! So glad you are all home and get a nice relaxing weekend!
    Meagan recently posted..Feeling FamousMy Profile

  8. brittney says:

    oh my goodness bless her little heart! Im glad she is doing better and your mom sounds like a saint! I hope everything calms down for you guys ((hugs))
    brittney recently posted..Just give me a horse!!!My Profile

  9. […] The week we have has got to justify my tardiness. Here’s most of our week in pictures, and if you go here you can see what the majority of our week was unfortunately focused […]

  10. Randi says:

    OH my goodness, my stomach is a mess just reading about it! I would be in pieces. And your mom- definitely deserves a medal for keeping it all together!

    I’m glad she’s doing better, that’s so scary!
    Randi recently posted..Always evolving, always unwavering.My Profile

  11. Again… says:

    […] is certainly making up for it this year. You do remember back in September when she gave us all a big scare, […]

  12. […] paying monthly minimums on NICU related & other medical bills for the girls and myself. After Lilah’s hospital stay last September (& a pile of bills it resulted in) I decided that this tax refund would pay them all off […]

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